Pushing The Call Button

Our mom has been in the hospital for nearly a week with a severe infection. The antibiotics they thought were treating it weren't touching it. The correct and apparently the only antibiotic that could treat it wasn't started until the fifth day after admission. 

She woke up long enough to answer questions and hopefully take two bites of something. I have never seen her so sick nor been so afraid for her life. I spent four nights with her in the hospital and have a new appreciation for that little red circle with a white cross in the middle. When you push it, someone comes.

The call button.

Some nurses and aides were great, some weren't.  None of them took the time to learn or use my name. But someone always came.

The antibiotic worked within a couple of hours and returned Mom to herself. She is being discharged today. I am filled with awe and gratitude and am thinking about call buttons--how they show up and when they show up in our lives. My premature conclusion is that we should all have one. 

One push. No need to dial 911. That's too many separate actions for someone who is really in trouble. Physically, mentally, emotionally, or spiritually.

However, based on recent experience with a patient that should be too young to die by today's standard, I know that having a call button doesn't mean that it is easy to push. In this case, I am not talking about muscle weakness but that can be true too. I am talking about pride and expectation.

When you spend 65 years walking to the bathroom and wiping yourself, pushing a button for someone to come and help you is one of the hardest things there is. Unless you count pooping or peeing in a diaper before you push the button. You can call it a brief if it makes you feel better. Hopefully, we can find comfort in language when we can't find it anywhere else.

Pushing a button for someone to come and help you for any reason—unless you are a boss with a secretary or personal assistant-- requires a conscious acknowledgment and willingness to admit that you are no longer independent every.time.you.push.it.

Unfortunately, this is how we define death in our culture. Just not openly. 

As a wise woman in a nursing home once told me, it is a good thing we don't have an on/off button, or we would push it way too soon.

As I was returning to my mom's hospital room after getting some dinner, I saw an elderly man in the lobby. He had a highly bandaged leg whose signs of seepage indicated that it might be time for a dressing change. But he wasn't there for himself. He was trying to get a wheelchair to get himself to his wife's room as she had just had brain surgery. 

The man working the front desk said he could get him one but it would be a minute. The elderly man insisted he could not wait, as he told his wife he would be there at 8:30 and he did not want to be late. He limped off in the direction of her room. 

By the time I signed in and caught up with him in the hall, he was leaning with his head against the wall to rest. I sidled up beside him and offered my arm. He eagerly accepted, thanked me, and leaned into every other step. 

At the long-awaited door on the third floor, I told him he made it. He looked at me and said “we made it.” I said okay, and smiled. He introduced his wife and we shared a little small talk. As I closed the door behind me I heard her say “Who was that?!” I laughed as I recognized myself in her.

I just had to put words to all of these things because that's what happens when my head and heart are full. Plus, I like how it all goes together.

 Sometimes, we have to push the call button and sometimes we get to answer it. That’s how call buttons work.  

One Room Away

I’m outlining a pink bunny in red embroidery thread.  It’s part of a quilt top I started making for my niece when she was born.  A year ago.  I hope it doesn’t become her wedding present.  

One room away, Predator vs. Alien is on the TV, and the rest of my household is discussing saliva made out of acid.

Seasons are changing.  In this one, I can no longer count on everyone being at the dinner table and day trips are catch as catch can.  We have work and workouts, band and birthday parties, and school is just around the corner.  Graduation dates are creeping onto real-life calendars and you can’t help but wish you could freeze time.  

But, the time you do have is, well…interesting.  

You eat together, watch highlights of the latest kickboxing video, and get fruit stickers on your arm from the boy eating an apple next to you.  You tickle their backs when they lay on your lap, but they don’t want to sew and you sure don’t want to watch what’s on TV.  

So, you enjoy their presence from a room away, and you think about…

Yesterday’s conversations, the passage of time, and daily tragedies that we survive, but cannot fix - all while trying to make sure your tears don’t fall on your sewing project because water makes the pattern disappear.  

Sometimes, you just plain stumble on a metaphor.

My mind became a gathering place for the people on my heart.  They didn’t seem to mind that they’d never met and the furniture was old.    

A friend suffered another stroke.  Mom is too young for a nursing home.  An aging child cares for an aging parent, both wondering if they can survive the arrangement.  An elderly widower has plenty of money, but no companion nor ability to drive.  No, he’s never heard of Uber.  Who is he?

I feel the weight of each one more than I care to.  Maybe.  But, especially because discomfort always gives way to hunting solutions, and I can’t find any.  It seems I am close enough to feel their pain, but too far away to offer any real comfort.  

Maybe it would be different if you weren’t just one person in one place.  Maybe there is no such thing as lasting comfort.  Maybe comfort only exists when it is fresh and given again and again and again.  And maybe it just feels better to write it all out, and hope that what you’ve written can comfort someone other than yourself. 

“Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our affliction, so that we may be able to comfort those who are in any affliction, with the comfort with which we ourselves are comforted by God.” 2 Cor:3-4

Sorting Day

It might be too soon to write, but this is the place I come when my heart and mind are full.  It feels too raw and too one-sided, just yet.  The main character in this story is my Mom, but she won’t be writing it and may or may not read it.  Even now, her iPhone is disabled.  Passwords can be problematic and customer service, worse still. 

I’m sitting in our hotel lobby, a 1/2 mile from her new home - The Healthcare Resort.  It has been her temporary home for the last 3 weeks, but the decision to stay was made two days ago.  Finding the care she needs at home has proven an impossibility.  Good care days apart is just not good at all.  

Yesterday was the 4th of July.  Independence Day.  We sat outside on the patio with the most perfect of breezes and ate take out from her favorite restaurant.  We played cards and had a private concert.  My son played the Star Spangled Banner and Sweet Home Alabama, unplugged on his electric guitar.  Pretty sweet, because he had to sit all the closer, so she could hear.  

We talked and colored and watched 50 fireworks shows all at once, stretched across the Topeka skyline.  We watched the deer who made their peace with the fireworks, but not with us, and knew again we were in a good spot when others came to watch the show from where we already were.

It was the best visit we’ve had in years.

But, today is Sorting Day.  She will go back to her apartment for the first time in a month and will be looking for a particular set of things…The essential ones.  

When you’re disabled and live alone, the essential things have to do with survival.  When you’re moving to a place where survival requires less of you, you can remember that you have art supplies and imagine having the energy to use them.  You can imagine spending an evening on your patio with your family instead of in the kitchen, because you did that just last night.

If you’re a daughter along for the ride, you keep telling yourself these things and take a lot of pictures of the good, because you need them to get through the part of this day that you’re dreading.  You naively believed that it wouldn’t come to this and you can’t stop wishing that it still won’t, somehow.  But, you will show up at the agreed upon time, and it will unfold like everything else.  And it will be okay.

The good will keep coming along with the impossibly hard, and we will keep trying to remember that Independence Day can include freedom to do life in a new way.  Maybe even a better way.  Last night reminded us that this isn’t all about loss and losing ground in the game of life.  

After all, we haven’t played cards or watched fireworks…in years.  We’ve been too busy doing the things we’ve always done, and learned we can survive without deviled eggs in the process.

I snapped this last night for her brother and sister-in-law after we hung up the phone, so they could see where we were.  This morning, it looks different and feels weightier.  I’m tempted to let it stand alone with all of its significance, and break my heart.  And all of ours.  

But, I remind myself that she’s not alone in that parking lot, or in that place.  I’m on the other side of the camera, and my siblings will be here when I am not, and her friends will be here when they are not, and her favorite priest will be here when they are not, and the staff will be here when they are not…

And with all of that, my husband said he sees hope.  So, I am going to go with that…  

39 and NOT holding...

Today is my last day in my thirties.  Tomorrow is my 40th birthday, and I don't think I could love that idea any more.  For real.  This surprises me because I've heard forty bad-mouthed my whole life.  I think of black balloons and pending hospitalizations from spontaneous bodily disintegration.

But, if 40 is old (which it isn't), and old is wise (which it can be), I'm celebrating that.  The wisdom of growing older, of knowing more and more who I am and what I'm about.  That is an incredible feeling.

If I had to deliver a 40th birthday speech to the whole world in ten seconds, I think it would be this:

Some things need doing better than they've ever been done before.  

Some just need doing.   

Others don't need doing at all.

Know which is which!

(author unknown)

and 

Let your God get bigger, and try to imitate the God you believe in.  

The End.

Ecclesiates says "there's nothing new under the sun", but I still experience things for the first time, all of the time.  In a couple of days, I'm supposed to sing the National Anthem for more than a thousand people (Pray for me, I'm terrified!).  In the past month alone, I made a meatloaf without a recipe and it was delicious (A miracle worthy of investigation by the Magisterium), attempted reading War and Peace (and decided it was in the "things that don't need doing at all" category), had a patient climb out of a hospital bed to get on her knees for prayer, did my first podcast, made a new friend, and peed in a Gatorade bottle. 

   

If I live to be 85-90 (my loose ideal), I can only imagine what that list will look like by then.  Or maybe I will be like my 99-year-old patient who is still "disgusted with her prayer life".  If I die tomorrow, I am grateful for the list, so far.

In the next 40 years, I want to learn Spanish well, continue learning to play the guitar, walk the Way of St. James, and keep the better-than-good things I already have, which are many.  In a word, relationships.  

I have friends, family, and an incredible job as a chaplain in a healthcare system.  Meeting people, learning their stories, and sharing in their joy and pain, are among my greatest privileges and treasures.  

But, I start and end my days at home.  My priority, crowning achievement, greatest challenge, inspiration, thrill, and triumph is living under the same roof with these people.

If they were not who they are, I would not be who I am.  At the end of my life, I pray that if I haven't done anything else, I've done well by them, and by all whom God has entrusted to me. 

And so I pray.  

Amen.